Wednesday, June 28, 2006

In Memory of Lynn


Our dear dear friend who blessed us with song and laughter passed yesterday afternoon. My how fragile life is. A young healthy vibrant compassionate soul snatched away following a suposedly routine hernia surgery. We love you Lynnie. We miss you. I feel your presense watching over me, I am most thankful. God bless you.

Monday, June 26, 2006

The Baby Boy's Bought a House


It is just amazing to me that Geoff owns a house. Now it is a family affair turning it into a home. Lu is in her glory. There are plenty of projects to keep me excited. Boy is it ever fun to spend his money. Range, dishwasher, carpets and on and on and on. Now if Geoff could just get by without that second job we would have more time for golf, grilling and general male slug-like behavior. The Buffalo Craig's list treated Geoff to a 34" rediculously heavy Sony TV that will require help from someone besides me to get into his bed room. Last week he found a virtually new GE range. Craig's list is awesome. Of course Lu and I get involved so while getting that TV we came home with a Nordic trak elliptical trainer for me, and a sofa and 2 chairs which Lu says we need to "lighten up" the living room. That was not the plan. I'm sure I will spend plenty of time on the sofa. I wonder if it will be appropriately balanced by time on the trainer.

We are looking for a new bed. How come it is almost impossible to figure out what is inside a mattress, whether it will last, or better yet if it is a reasonable deal? We found 3 places that sell Serta beds. None of them are exactly the same model - the prices are about the same. I bet it is a conspiracy by Serta to keep retailers happy and customers in the dark - or at least asleep.

I'm just loving Ned these days. My energy is slowly returning. My enthusiasm is a bit ahead of my ability, but I'm smiling most of the time.

Saturday, June 17, 2006

9 Dex Days to Go

I'm psyching myself up for the 9 remaining dex days. It is much easier to do with Ned's and the Pied Piper's help. Last night we had a great celebration with an old group of friends. A joint wedding, remission, house warming reconnection. I even lost myself into a pleasant glass of Australian shiraz and savored a small piece of tenderloin. Near complete remission is nearly a vacation. Clearly a celebration as far as I'm concerned.

My brother Mark's mega estate sale over the weekend was an event to behold. Hundreds of people, cold rain and wind, but none-the-less a phenomenally successful family reunion. It was worth the 8 hour drive to and from. I still keep trying that "Beam me up Scotty" thing. Unfortunately I keep getting moans and groans from engineering about the malfunctioning widget I can't pronounce.

Tuesday, June 06, 2006

Ned's M-Spike

The word of the day "complete remission" My wonderful myeloma expert looked at the multitude of evidence and said "There is no evidence of myeloma in your blood. There is no detectable M-spike in your serum" The "M-Spike" is found via a laboratory test known as serum protein electrophoresis which looks for abnormal immunoglobulin (proteins) in the blood. It is nice to know that I don't have any detectable abnormal proteins in my blood.

I'll be back after my 4th cycle in late July for a more thorough prodding, poking, bone boring and picture taking. In the mean time I'm going to take the news to heart and smile to the point of tears! I love Ned. I am now taking dex with half the frequency. A treat for all my friends, wife and me.

Now Ned has to work on all the remaining evidence. He has almost 2 months to finish up. No abnormal cells in the bone marrow aspirate, no protein in the urine, no holes in the bones!

Thursday, June 01, 2006

My Laughter Continues

The good Doctor Onco granted my wish and switched me to low dose buzz me out, manic inducing, bone eating, eye deteriorating, skin blotching, DT inducing, dexamethazone. I am so looking forward to kissing this drug goodbye. Now I go to the myeloma specialist on Tuesday for the latest gossip and prognosis on Scott's laughing plasma cells.

The 9 vials of blood and 4 liters of piss investigated on Tuesday all confirmed earlier suspicions of a partial remission. Although this time it was not 90% I’ll take the difference as the normal random we suck at getting accurate results syndrome. Ned still has some work to do, but in no way am I walking out our bargain. Play that tune, call those plasma cells and enlighten my immune system Mr. Pied Piper!