Wednesday, August 13, 2008

Just the Boring Facts

I have received numerous inquiries about my experience with GRN163L. Unfortunately my MM did progress toward the end of the 20 weeks I was on the trial. I withdrew from the trial and was looking forward to a drug free escape for the rest of the summer. It is obvious that a significant part of the disease progress occurred in my left humerus. I now have a nice titanium spike in my arm. To eliminate some the healing competition I immediately started radiation treatment to kill off the MM tumor near the break. Just the left humerus and rotator cuff area are getting zapped.

Next is a Rev/low dose dex regimen scheduled to start in early September. The durability of which may be affected by the GRN163L therapy. Remember GRN is not an anti-tumor agent. It is an anti-MM stem cell agent. It is assumed the MM stem cell is a very small portion of the tumor burden. Only time will tell.

Remember Spiderman has radioactive blood...

Sunday, August 10, 2008

Spidey Conversion Progress

As many of you may already know Spiderman has radioactive blood AND there is a real dearth of superheros these days. In an effort to do my part for the world and mankind I am well on my way through the 12 treatment Spidey conversion process. I have purchased several sleeveless muscle shirts in part because they fit over my fracture brace and more importantly I gotta be ready when I actually obtain some muscles. I've never had muscles and continue to look like a dork in a muscle shirt, but you just wait! The treatment takes about 5-10 minutes most of which is setup and positioning. Check out that cool grid and laser alignment. I have been reassured that I don't eat, breath or perform any other related vital functions with my left humerus so there should be no side effects (other than those mentioned above).

I am over the hump and coasting toward a full recovery. The killer muscle tension I get from long periods of immobilization are irritating and screw around with that deep restful sleep I so long to experience. Complaining about such triviality after I step back and look at a slightly bigger picture makes me feel like a whiner. I have to admit whining is rewarding at times but it is sort of like shopping - the high is short lived.

P-n-L, Spidey